So Andrew and I have been married for 6 1/2 years. It has been a long and hard trip for me emotionally. Today was yet another example of the hardship. I had to plug my fingers in my ears and say Lalala just to get him to stop talking and go away.
It all started when the glass guy called to tell me that he lost our paperwork and Andrew had to bring the glass pane into the shop. Andrew, of course, makes it into something it does not have to be and in the process makes me feel terrible. He continues to make me feel terrible almost on a daily basis and he wonders why I say "I hate" him. In fact he tells me not to hate him. So, I guess I am just supposed to take all the negative shit he dishes out and suck it up and treat him like a prince--like accepting that he's negative and that's wonderful. That's not the way it works fucker.
There are many reasons why I say I hate him. The main one is by how he makes me feel. He knows he makes me feel worse thus making the MS worse. I asked him this morning if he feels that people like him because he's a nice guy that people gravitate towards. He said no. I think he is narcissistic in that he thinks because HE feels love toward me that I should automatically feel all kinds of love and appreciation for everything that he DOES. It's really a fucked up relationship.
All I get out of him is the basics and nothing more. Someone else could do the basics too. I need MORE.
in case your reading this, Andrew, here is what I need, which I think you already know, but just don't want to do.
A husband who never argues or ever drags out something so long that I can't take it and makes me feel terrible.
I need a nice guy for a husband and not an immature brat, which you are.
A husband who is actually a nice person. He's not a nice person. He'd rather make sure everyone knows how miserable he is--including me. That's fucked up!
Communication with the foundation of the barn guy.
Don needs to be called and asked if he got a chance to see Don's planes for the 2-stall addition and what are we going to get a bid on and will his barn match what we already own?
How much the 4-stall barn quote is with the gravel included
When can he start because of the muddy ground?
I have to still tell Andrew to do this kind of stuff.
Yesterday, I had to tell him to go outside and pay attention to the tree guys. He would rather hide like a kid.
I'm so tired of this. How much more am I supposed to endure of a caregiver who only does the basics and no more.
Arguing with me only makes me worse. How am I supposed to not hate on a person who makes me worse.
Like I said, when I die, the last words out of my mouth will be "congratulations. You've finally killed someone.
Tuesday, December 29, 2009
Sunday, December 20, 2009
Purple Legs and Feet
This is a result of me taking a shower and my feet having to be on the floor for approximately five minutes.
Saturday, December 5, 2009
Stanford on Hold.
So I got a call from Stanford yesterday. I was told that the CCSVI surgery has been put on hold. Some politician got a hold of the situation. So I'm put off until late January or February. I really don't care because the doctor even said on the phone that it probably won't make me any better, but will hopefully keep me from getting worse. With that kind of a statement, I don't hold a lot of faith in the whole thing.
So, I'm letting Andrew go through all the feelings of hope or whatever there is. He's not helping me anyway. He is hoping that the surgery will be an easy fix for him. He thinks he helps me by doing the minimum as in throwing food at me occasionally and rinsing my ass after a shower. There is so much more, but he'd be better off if I was dead anyway 'cause he's really not interested in really helping..
Today I stood up next to my bed once. I tried again later and couldn't do it.
So, I'm letting Andrew go through all the feelings of hope or whatever there is. He's not helping me anyway. He is hoping that the surgery will be an easy fix for him. He thinks he helps me by doing the minimum as in throwing food at me occasionally and rinsing my ass after a shower. There is so much more, but he'd be better off if I was dead anyway 'cause he's really not interested in really helping..
Today I stood up next to my bed once. I tried again later and couldn't do it.
What's Wrong with the American Language?
I've noticed a severe decline in American language usage as in it's becoming incorrect more and more. It's all over T.V., radio, books, magazines, and basically all media. Who hires these dummies? Dummies themselves is the only answer I can find. I'm not even old enough to be thoroughly disgusted by people of my generation, but it seems everyone that wants to say something or write something is doing it. Here's a clue. Just because everyone is doing it doesn't mean it is correct by any means.
Here are some examples.
December 5, 2009 is just that. It is not correct to say or write December 5th. It is correct to say or write December 5. PERIOD. The only time st, nd, rd, or th is added at the end of a date is if it is said or written BEFORE the month as in the 5th of December. Look it up! It's incredibly ignorant, stupid, and uneducated to say or write December 5th, 2009. LOOK IT UP! Even a simple word processing program knows better. Try it. Start typing and it will insert the correct type.
Another one is "till".
This is completely uneducated to spell this word in the wrong context. I've seen local T.V. stations write "this offer is valid till the expiration date". It is 'til or until. DUH! You would only spell "till" if you are going to till a field.
What's wrong with people? Are they getting that dumbed down to where they do what everyone else does? I have one word for them. Dummy! Grow a brain stem!
Here are some examples.
December 5, 2009 is just that. It is not correct to say or write December 5th. It is correct to say or write December 5. PERIOD. The only time st, nd, rd, or th is added at the end of a date is if it is said or written BEFORE the month as in the 5th of December. Look it up! It's incredibly ignorant, stupid, and uneducated to say or write December 5th, 2009. LOOK IT UP! Even a simple word processing program knows better. Try it. Start typing and it will insert the correct type.
Another one is "till".
This is completely uneducated to spell this word in the wrong context. I've seen local T.V. stations write "this offer is valid till the expiration date". It is 'til or until. DUH! You would only spell "till" if you are going to till a field.
What's wrong with people? Are they getting that dumbed down to where they do what everyone else does? I have one word for them. Dummy! Grow a brain stem!
Friday, November 27, 2009
I've Made the Decision--No More PT
I decided today to cancel PT. What I do need is massage therapy and Occupational therapy.
Putting my feet on the floor just isn't happening. My PT wants me to put on compression hose. Those hose trap the blood at the ankles. When that happens I get weak.
Here's how it goes.
Pain-weakness-no standing up.
Putting my feet on the floor just isn't happening. My PT wants me to put on compression hose. Those hose trap the blood at the ankles. When that happens I get weak.
Here's how it goes.
Pain-weakness-no standing up.
Thursday, November 26, 2009
Why so Many MS Marriages Fail.
I don't understand it. I will absolutely not accept or tolerate this kind of behavior from a 44-year-old man. I didn't have kids for a reason--I didn't feel like dealing with the back talk and crappy attitudes that teenagers can get. I know. I was once a teenager.
This is what I just don't get. After having quite a thorough talk with Andrew weeks ago about not pitching fits in front of me, he does it still. I've asked him if he pitches fits at work and lets everyone know how unhappy and miserable he is. He said no. He pitches fits at me constantly. My summation--he has respect for people at his work and none for me. Forget any love. A person that treats me like that has ZERO love for me. Sure he does not hit me, verbally abuse me, or throw anything at me, but he might as well. It's emotional abuse that he's dishing out.
I ask what the pay off is. My summation--the payoff is anger makes him feel good (good as in makes him feel like he's in control) and subconsciously he is demanding to be left alone. That's the payoff. He wants to be in his own little world and fuck everyone else including me. Why else would he do this? I hope he feels ashamed for what he does to a very disabled person.
So this is one reason why MS marriages die. A MSer feels they need/deserve to be treated nicely/respectfully. Just because the MSer has MS and their physical body is failing, doesn't mean that they should be treated any less than a perfectly normal person. An MSer is already having a hard enough time and being treated badly will make the MS worse.
All this over a turkey. I know, from experience in preparing store-bought turkeys, that there is always a neck and giblet bag inside the turkey. That's common knowledge for any turkey preparer or anyone who actually READS THE BAG or listened to their wife on any holiday where a turkey was prepared. The turkey is also supposed to be rinsed thoroughly inside and out. Andrew has prepared quite a few turkeys in the past. Last year he couldn't find the neck inside and I had to tell him that it was there. One always removes the neck and giblets. The giblet sack has a liver in it. I don't want my turkey having a liver flavor from a liver being cooked in it. He might. I don't know.
This Thanksgiving he blows up at me because he mentions that he couldn't find a giblet bag because the turkey was still somewhat frozen. Instead of thawing the turkey out and investigating more he gets mad at me because I told him the bag was in there without even seeing the turkey. He gets madder because he already put the turkey in the oven. How is that my fault? So, by this time he's extremely mad because he has to unpack the turkey and get the giblet bag out. Again. How is that my fault? I assume I am being blamed because I put the giblets in there at the packaging plant and rode in the freezer and stayed in the freezer just to make sure Mr. Andrew wouldn't find it and he'd get angry at his wife. One word. Immature.
So after all this he sits down and starts talking to me about how he feels so angry all the time and he's been like that forever. That's his problem and not mine. How is that my problem or fault to where I deserve to receive his wrath? I gave him the tools (many times previously) for anger management. I am the one that should be angry and I'm not, but I am getting numb to where I'm not feeling much. Is that what he wants--for me to not feel anything at all?
Anger Management
Since he is obviously not able to manage his anger the next step is this. In a nutshell, it's not about managing anything. It's all about positive thinking in the first place. Instead of fighting the losing battle of fighting anger and negative feelings, which forces a person to dwell on their negativity--just think differently. Just think positive about every aspect of your life; from the simple, minor aspects like wiping your butt to the bigger ones as in driving the car. Example: Say "yay I pooped" instead of "son of a bitch. Now I have to wipe my ass and I hope I don't get it on my fingers". The bigger one. "I have the legs to get in my nice, new car, which I love, drive to work and contribute to society". Instead of--"those bastards that drive out on the road make my life a living hell. They better not get in my way or I'll flip them the bird and exhibit road rage so they see just how pissed off I am at them. That'll teach 'em".
You don't have to be an angry, hateful person. It is a daily decision or you will drive people away to where they won't want or have anything to do with you. You will end up a lonely man living alone where no one gives a shit about you. You think I'm driving you away? You have finished me off and have succeeded in driving the last nail into the coffin. Like I said; if I was not ill, I would drive away--far away and not look back.
I've told him all of the examples above.
I've also told him to ask me no matter what it is--anything. If I don't know the answer, I'll say that. I always believed two brains working on something is better than one. He's going to have to get over his enormous ego or, with MS and everything, I'm out of here. It is well known that men in general will not ask questions. That is the stupidest thing. They have such big egos that get in the way of their lives. They refuse to act on making the decision to let their brain override the ego.
This reminds me of a time where a man friend asked me once if a stock trailer would be good trailer to buy. I looked underneath it and saw the tremendous unsafe rust. This man was man enough to see that it would cost a lot of money to replace the floor and to this day admires me for knowing something. I felt like I was being respected by this man and to this day still feel like he greatly respects me.
Oh and one more thing about the turkey. Last year he couldn't find the neck.
He gets so pissed if I am right about anything. Apparently, he didn't understand the wedding vows he took. "Honor and cherish in sickness and in health". Is the anger he is acting upon honoring me in any way? No. It's honoring himself at my expense while hurting me more and more both physically and mentally. I wonder what happened to the 50/50 partnership too. I also think that he is trying to pave the way for two things. 1. My death. If he succeeds in making me hate him, then it won't hurt him so bad when I die. 2. If I do leave, that won't hurt so bad either as long as there is some really good hate going on. It's all about him isn't it. I guess I really don't matter.
So this is the 2009 Thanksgiving holiday that I get to look forward to. I still have to take a shower. He's already made me cry all before 11 a.m.
How do I make him see that this marriage is not all about him and his anger? Sure. I understand that it is hard work to be a caregiver of an MS patient but is that an excuse to display anger towards the MS patient? No. It seems this happens every weekend. How much more am I expected to take? He says he wants me to talk to him before these things come up. How am I supposed to know when his anger is going to surface? I refuse to do that. It is hard enough to be me. He says "if I begin to display anger, call me on it so I don't keep going". You call yourself on it. You aren't stupid. You know exactly what you are doing. You're hoping to get away with it. You wonder why I don't even want to be around you. Hello! It's called conditioned response until things are proved otherwise.
I can barely be responsible for myself. How am I supposed to manage his anger for him? That's not my job. I've threatened to leave numerous times. I'm beginning to think that he sees those threats as idle. Do I act on them now because he won't stop? I've asked him to put on the act that he did for our 5 year courtship. If he could do it then he should definitely do it now. I had no idea Andrew was like this until I got sick. Maybe he really is trying to drive me away. It's working.
He always says that I'm telling him what he's doing wrong. I never tell him that he's doing anything wrong. I always tell him how to do it right if I know what the hell I'm talking about. Again. It's his enormous ego in the way.
I can't take this anymore. He needs some serious help--professional help. He refuses to go do that. Is it going to cost him more to see a shrink or to lose me? What's worth more to him--money or me? Sure shrinks sit there and listen and take your money to do so if you don't tell them in plain English that you are there for a reason and you want them to tell you what to do to fix it. I think it is because they either don't know anything or don't care. He has the tools to change this already. All he needs to do is make the decision to change and then follow through with it. No one else can fix him but himself. He wants someone else to do it because that's the easy way out.
I need to follow through with my threats. How many more chances do I give him? Is this what I married? I did not sign up for this. I promised myself that I would never marry a negative, hateful man. Married or divorced? That's the question.
This is what I just don't get. After having quite a thorough talk with Andrew weeks ago about not pitching fits in front of me, he does it still. I've asked him if he pitches fits at work and lets everyone know how unhappy and miserable he is. He said no. He pitches fits at me constantly. My summation--he has respect for people at his work and none for me. Forget any love. A person that treats me like that has ZERO love for me. Sure he does not hit me, verbally abuse me, or throw anything at me, but he might as well. It's emotional abuse that he's dishing out.
I ask what the pay off is. My summation--the payoff is anger makes him feel good (good as in makes him feel like he's in control) and subconsciously he is demanding to be left alone. That's the payoff. He wants to be in his own little world and fuck everyone else including me. Why else would he do this? I hope he feels ashamed for what he does to a very disabled person.
So this is one reason why MS marriages die. A MSer feels they need/deserve to be treated nicely/respectfully. Just because the MSer has MS and their physical body is failing, doesn't mean that they should be treated any less than a perfectly normal person. An MSer is already having a hard enough time and being treated badly will make the MS worse.
All this over a turkey. I know, from experience in preparing store-bought turkeys, that there is always a neck and giblet bag inside the turkey. That's common knowledge for any turkey preparer or anyone who actually READS THE BAG or listened to their wife on any holiday where a turkey was prepared. The turkey is also supposed to be rinsed thoroughly inside and out. Andrew has prepared quite a few turkeys in the past. Last year he couldn't find the neck inside and I had to tell him that it was there. One always removes the neck and giblets. The giblet sack has a liver in it. I don't want my turkey having a liver flavor from a liver being cooked in it. He might. I don't know.
This Thanksgiving he blows up at me because he mentions that he couldn't find a giblet bag because the turkey was still somewhat frozen. Instead of thawing the turkey out and investigating more he gets mad at me because I told him the bag was in there without even seeing the turkey. He gets madder because he already put the turkey in the oven. How is that my fault? So, by this time he's extremely mad because he has to unpack the turkey and get the giblet bag out. Again. How is that my fault? I assume I am being blamed because I put the giblets in there at the packaging plant and rode in the freezer and stayed in the freezer just to make sure Mr. Andrew wouldn't find it and he'd get angry at his wife. One word. Immature.
So after all this he sits down and starts talking to me about how he feels so angry all the time and he's been like that forever. That's his problem and not mine. How is that my problem or fault to where I deserve to receive his wrath? I gave him the tools (many times previously) for anger management. I am the one that should be angry and I'm not, but I am getting numb to where I'm not feeling much. Is that what he wants--for me to not feel anything at all?
Anger Management
Since he is obviously not able to manage his anger the next step is this. In a nutshell, it's not about managing anything. It's all about positive thinking in the first place. Instead of fighting the losing battle of fighting anger and negative feelings, which forces a person to dwell on their negativity--just think differently. Just think positive about every aspect of your life; from the simple, minor aspects like wiping your butt to the bigger ones as in driving the car. Example: Say "yay I pooped" instead of "son of a bitch. Now I have to wipe my ass and I hope I don't get it on my fingers". The bigger one. "I have the legs to get in my nice, new car, which I love, drive to work and contribute to society". Instead of--"those bastards that drive out on the road make my life a living hell. They better not get in my way or I'll flip them the bird and exhibit road rage so they see just how pissed off I am at them. That'll teach 'em".
You don't have to be an angry, hateful person. It is a daily decision or you will drive people away to where they won't want or have anything to do with you. You will end up a lonely man living alone where no one gives a shit about you. You think I'm driving you away? You have finished me off and have succeeded in driving the last nail into the coffin. Like I said; if I was not ill, I would drive away--far away and not look back.
I've told him all of the examples above.
I've also told him to ask me no matter what it is--anything. If I don't know the answer, I'll say that. I always believed two brains working on something is better than one. He's going to have to get over his enormous ego or, with MS and everything, I'm out of here. It is well known that men in general will not ask questions. That is the stupidest thing. They have such big egos that get in the way of their lives. They refuse to act on making the decision to let their brain override the ego.
This reminds me of a time where a man friend asked me once if a stock trailer would be good trailer to buy. I looked underneath it and saw the tremendous unsafe rust. This man was man enough to see that it would cost a lot of money to replace the floor and to this day admires me for knowing something. I felt like I was being respected by this man and to this day still feel like he greatly respects me.
Oh and one more thing about the turkey. Last year he couldn't find the neck.
He gets so pissed if I am right about anything. Apparently, he didn't understand the wedding vows he took. "Honor and cherish in sickness and in health". Is the anger he is acting upon honoring me in any way? No. It's honoring himself at my expense while hurting me more and more both physically and mentally. I wonder what happened to the 50/50 partnership too. I also think that he is trying to pave the way for two things. 1. My death. If he succeeds in making me hate him, then it won't hurt him so bad when I die. 2. If I do leave, that won't hurt so bad either as long as there is some really good hate going on. It's all about him isn't it. I guess I really don't matter.
So this is the 2009 Thanksgiving holiday that I get to look forward to. I still have to take a shower. He's already made me cry all before 11 a.m.
How do I make him see that this marriage is not all about him and his anger? Sure. I understand that it is hard work to be a caregiver of an MS patient but is that an excuse to display anger towards the MS patient? No. It seems this happens every weekend. How much more am I expected to take? He says he wants me to talk to him before these things come up. How am I supposed to know when his anger is going to surface? I refuse to do that. It is hard enough to be me. He says "if I begin to display anger, call me on it so I don't keep going". You call yourself on it. You aren't stupid. You know exactly what you are doing. You're hoping to get away with it. You wonder why I don't even want to be around you. Hello! It's called conditioned response until things are proved otherwise.
I can barely be responsible for myself. How am I supposed to manage his anger for him? That's not my job. I've threatened to leave numerous times. I'm beginning to think that he sees those threats as idle. Do I act on them now because he won't stop? I've asked him to put on the act that he did for our 5 year courtship. If he could do it then he should definitely do it now. I had no idea Andrew was like this until I got sick. Maybe he really is trying to drive me away. It's working.
He always says that I'm telling him what he's doing wrong. I never tell him that he's doing anything wrong. I always tell him how to do it right if I know what the hell I'm talking about. Again. It's his enormous ego in the way.
I can't take this anymore. He needs some serious help--professional help. He refuses to go do that. Is it going to cost him more to see a shrink or to lose me? What's worth more to him--money or me? Sure shrinks sit there and listen and take your money to do so if you don't tell them in plain English that you are there for a reason and you want them to tell you what to do to fix it. I think it is because they either don't know anything or don't care. He has the tools to change this already. All he needs to do is make the decision to change and then follow through with it. No one else can fix him but himself. He wants someone else to do it because that's the easy way out.
I need to follow through with my threats. How many more chances do I give him? Is this what I married? I did not sign up for this. I promised myself that I would never marry a negative, hateful man. Married or divorced? That's the question.
Monday, November 23, 2009
Oh. My Hair!
So the other day I skipped a couple of days of shower so that my hair would be oily enough to comb out with my fingers. I had a big rats' nest on one side.
I couldn't get it all even after trying. I managed to bruise up that side of my head so much that it hurt like crazy the next day. Bruised up from pulling the hair by accident.
So today, after I took a shower, I went at it again--this time with some hair oil. That didn't happen either. I finally took the scissors to it and cut off a handful size of 8 inch long hair. Ah. Much better. The rats' nest is gone, but a good amount of hair on the side of my head is a lot shorter.
I just pulled it back into a ponytail and you'd never know the difference--until tomorrow. We'll see then.
Before this, I had Andrew cut off about 2 inches off the ponytail. Much better.
So much of having the hopes of beautiful, long hair...for now.
I couldn't get it all even after trying. I managed to bruise up that side of my head so much that it hurt like crazy the next day. Bruised up from pulling the hair by accident.
So today, after I took a shower, I went at it again--this time with some hair oil. That didn't happen either. I finally took the scissors to it and cut off a handful size of 8 inch long hair. Ah. Much better. The rats' nest is gone, but a good amount of hair on the side of my head is a lot shorter.
I just pulled it back into a ponytail and you'd never know the difference--until tomorrow. We'll see then.
Before this, I had Andrew cut off about 2 inches off the ponytail. Much better.
So much of having the hopes of beautiful, long hair...for now.
Saturday, November 21, 2009
The Latest Gripes
Pictures to the right.
1. Leg wound from 1st day of supplier fitting KAFO braces on me. New braces pinched, bruised, and, split the skin.
2. Brand new (2nd time sat on by me) shower chair broke putting me on the floor. Was refunded entire cost of chair.
3. Leg brace supplier put open-toed, knee high compres-
sion hose on me. The toes swelled and the knees turned purple.
(All pics taken within last 4 days)
Thursday, November 19, 2009
Just another note...MS & me today
I have cold feet and legs most of the time. If I wrap them up in a warm blanket they will eventually warm up.
I'm not on any meds other than LDN 3 mg. I am supposed to take D3 2000IU and B!2. but kind of slack on that.
I'm in bed 95% of the day.
My diet recently consists of a scaled down version of Dr. Swank's taco salad and Andrew's famous bean dip. That's pretty much all I can eat.
PMS reeks havoc on me and I get it two weeks out of the month Every month on the dot.
I get severely bladder incontinent a few days prior to my period.
Andrew nor I have children.
I am alone at home 12 hours a day four days per week. I really can only handle being around people 3 days per week.
I'm not depressed because I am interested in stuff.
I don't get out of bed much when no one is here for safety reasons.
Computers help my memory stay somewhat sharp and my mind alert.
Andrew and I have a wonderful sex life. I have not lost that in fact, it has increased in intensity. I just can't do the acrobatics that I used to. It truly is the only exercise I get.
Heat sensitivity. The colder the better.
I'm not on any meds other than LDN 3 mg. I am supposed to take D3 2000IU and B!2. but kind of slack on that.
I'm in bed 95% of the day.
My diet recently consists of a scaled down version of Dr. Swank's taco salad and Andrew's famous bean dip. That's pretty much all I can eat.
PMS reeks havoc on me and I get it two weeks out of the month Every month on the dot.
I get severely bladder incontinent a few days prior to my period.
Andrew nor I have children.
I am alone at home 12 hours a day four days per week. I really can only handle being around people 3 days per week.
I'm not depressed because I am interested in stuff.
I don't get out of bed much when no one is here for safety reasons.
Computers help my memory stay somewhat sharp and my mind alert.
Andrew and I have a wonderful sex life. I have not lost that in fact, it has increased in intensity. I just can't do the acrobatics that I used to. It truly is the only exercise I get.
Heat sensitivity. The colder the better.
The Ripping Off of American Taxpayers, Medicare, and the Disabled.
In a previous post, I stated that I received an electric wheelchair that does not work for me that cost over $19,000.
The supplier blatantly stated (among other things) that they would not provide an adequate chair that would suit me because then they would not make enough money on it after delivering it. Many lies and fraud have been committed by this supplier, who does business out of the Sacramento, California area. I have subsequently filed a fraud claim with Medicare in hopes to get a chair from a different company that will work for me and get Medicare’s contract pulled out from underneath this supplier leaving them out in the cold without the bread and butter of Medicare to rip off.
I was going to let things ride and let Medicare do their job and correct the situation until...Yesterday, I received a nasty letter in the snail mail from the supplier stating even more untruths. This letter arrived at my house on 11/18/2009. It got refused by the post office because the supplier couldn’t figure out the city or zip code to where I live (even though they delivered the chair to my house--idiots). The supplier has this information, but in my opinion, put the wrong zip code on it so it wouldn’t get delivered speedily thus buying them more time. It’s a good thing there is lots of competition out there. I’ll be going somewhere else for my next chair. I only went to this company because my PT at the time ordered it from them. I didn’t know any better. It’s my first chair. It’s a good thing I still have an 8-year-old powerchair that is borrowed and works 100% better than this crappy new one.
Here is the letter in quotes and my statements are outside if quotes.
“October 27, 2009
My name
Address
Wrong city and zip
RE: Power wheelchair
This is to inform you that we will not take your chair back as a return. You received the chair on 8/26/09, at this time, it was taken in your home and you were instructed on how to use it.”
I was home alone, the guy didn’t even ask me to sit in it, and had me sign a piece of paper that he said “stated I was here”. He did not leave any paperwork that stated their policies or anything regarding anything. Hello, sign, and goodbye. He took advantage of a disabled woman for sure.
Medicare Ordered them to pick it up and keep it. They picked it up, but brought it back.
“Approximately 3 weeks later you called complaining that your chair would not go on the gravel and that it would not go up your ramp”.
Completely false statement. I called them a week after receiving it when my husband could help me get into the chair for the first time. I called the supplier and complained about the chair driving with a delayed stop so it was hitting the walls in my house. I also complained about the leg lifts not going high enough. There was no mention of gravel at any time either.
“When we came to your home to look at the chair to make sure that it was working properly we noticed that you had used a saw to cut off the leg rests.”
Wrong again. We were told by them to cut off the end of the leg posts where the foot rests go because they were too long and damaged the house and I couldn’t use the foot rests because my legs are longer than the footplates allow unless I was supposed to sit with my knees around my neck.
“We tested the programming and it worked just fine”.
The programming was never a problem except for the stop delay, Which that is the one thing they did correct.
“We explained to you at that time that the chair was working properly and that you needed to modify your ramp as it is too steep for a large powerchair to be able to go up, and the chair is not made to go in gravel”.
Chair working properly ? For whom? Them? It doesn’t and never did work properly for me. How can they justify that?
Liar! They never said that about the ramp. The ramp is up to code. Both of them are. We have one in the front and one in the back. The old borrowed wheelchair goes up and down both just fine. I guess a wheelchair that squirrels all over inside the house and pokes holes in walls works fine in their book. A powerchair should go up and down a ramp without hesitation. I never said anything about “gravel”. I don’t know where they get that idea from. The chair does not go up a small incline or over a small bump without pitching to one side or the other even to get in and out of the front door. That’s the problem. It has no power. They reemed Medicare. It is not the right chair.
”This chair was provided to you to meet your height and weight measurements and to allow you to get around inside your home”.
But not disability needs and it does not enable me to even get out the front door in case of a fire. They just asoon I burn to death.
They didn’t measure my height and weight either. I couldn’t stand up for height and they didn’t bring a scale for weight. I had three other witnesses see that. So that’s a lie.
“You asked us to narrow the seat (which we didn’t recommend) but you insisted and so when we picked it up for the modifications and noticed that there were different wheels on the chair.”
They did not tell us that they did not recommend narrowing the seat. The seat was way too wide and crashed into the hall walls and doorways. The chair was for a 600+ lb person width wise and was just too wide. This goes back to the better wheelchair and the profit that they wouldn’t make, so I get to suffer. They told us to put bigger tires on it and to modify it for them, which proved to be dangerous going up and down the ramp. The chair almost ended up going over backwards numerous times and had to be physically pushed up the ramp by two men. There is another witness to attest to how dangerous it became.
“You said they were from your old chair and because they were larger it would go outside easier”
The other one kicks this new one’s ass outside. It has no leg lifts though. The leg lifts on the new one are worse than no leg lifts at all.
“It is not recommended that you keep those wheels on the chair, as it has modified the way the chair drives”.
Now the disclaimer, so I won’t sue the pants off of them.
They told us to put them on. Now we’re supposed to take them off? Don’t worry that’s done already because they made this stupid chair totally unsafe anyway. Oh and it is a Pride Quantum Rehab chair—useless to me.
We put those different wheels and tires on it in hopes the chair would work...at all. They didn't solve the problem.
“We have made every accommodation that we are able to do. The chair was custom ordered to your specific needs to enable you to get around inside your home.”
Notice how there is no mention of the leg rests and my complaints about them not being high enough. The chair is unusable to me mainly because of that.
Nice kiss if ending huh.
Sincerely,
Loser President of the Company
who doesn’t give a rats ass about the customer especially a disabled one.
I have complained about everything I mentioned above and more to the supplier. Did they fix it? No. Instead I get this kiss off letter.I would name the company, but I need to brush up on the CA state libel law.
I do hope that others will come forward and group together against this Sacramento, California Medical Supply company. Medicare has informed me that if there are enough complaints against this company then they will indeed pull their Medicare contract. I believe this company has no business being in the medical supply business under Medicare contract. We the disabled cannot sit back and let these companies take advantage of us, Medicare, or the taxpayer. We might be disabled, but we still have a voice and a strong one at that.
I did find another person on the net that has problems with this same company.
This post will be added to when my husband sees it. I’m sure I forgot something.
The supplier blatantly stated (among other things) that they would not provide an adequate chair that would suit me because then they would not make enough money on it after delivering it. Many lies and fraud have been committed by this supplier, who does business out of the Sacramento, California area. I have subsequently filed a fraud claim with Medicare in hopes to get a chair from a different company that will work for me and get Medicare’s contract pulled out from underneath this supplier leaving them out in the cold without the bread and butter of Medicare to rip off.
I was going to let things ride and let Medicare do their job and correct the situation until...Yesterday, I received a nasty letter in the snail mail from the supplier stating even more untruths. This letter arrived at my house on 11/18/2009. It got refused by the post office because the supplier couldn’t figure out the city or zip code to where I live (even though they delivered the chair to my house--idiots). The supplier has this information, but in my opinion, put the wrong zip code on it so it wouldn’t get delivered speedily thus buying them more time. It’s a good thing there is lots of competition out there. I’ll be going somewhere else for my next chair. I only went to this company because my PT at the time ordered it from them. I didn’t know any better. It’s my first chair. It’s a good thing I still have an 8-year-old powerchair that is borrowed and works 100% better than this crappy new one.
Here is the letter in quotes and my statements are outside if quotes.
“October 27, 2009
My name
Address
Wrong city and zip
RE: Power wheelchair
This is to inform you that we will not take your chair back as a return. You received the chair on 8/26/09, at this time, it was taken in your home and you were instructed on how to use it.”
I was home alone, the guy didn’t even ask me to sit in it, and had me sign a piece of paper that he said “stated I was here”. He did not leave any paperwork that stated their policies or anything regarding anything. Hello, sign, and goodbye. He took advantage of a disabled woman for sure.
Medicare Ordered them to pick it up and keep it. They picked it up, but brought it back.
“Approximately 3 weeks later you called complaining that your chair would not go on the gravel and that it would not go up your ramp”.
Completely false statement. I called them a week after receiving it when my husband could help me get into the chair for the first time. I called the supplier and complained about the chair driving with a delayed stop so it was hitting the walls in my house. I also complained about the leg lifts not going high enough. There was no mention of gravel at any time either.
“When we came to your home to look at the chair to make sure that it was working properly we noticed that you had used a saw to cut off the leg rests.”
Wrong again. We were told by them to cut off the end of the leg posts where the foot rests go because they were too long and damaged the house and I couldn’t use the foot rests because my legs are longer than the footplates allow unless I was supposed to sit with my knees around my neck.
“We tested the programming and it worked just fine”.
The programming was never a problem except for the stop delay, Which that is the one thing they did correct.
“We explained to you at that time that the chair was working properly and that you needed to modify your ramp as it is too steep for a large powerchair to be able to go up, and the chair is not made to go in gravel”.
Chair working properly ? For whom? Them? It doesn’t and never did work properly for me. How can they justify that?
Liar! They never said that about the ramp. The ramp is up to code. Both of them are. We have one in the front and one in the back. The old borrowed wheelchair goes up and down both just fine. I guess a wheelchair that squirrels all over inside the house and pokes holes in walls works fine in their book. A powerchair should go up and down a ramp without hesitation. I never said anything about “gravel”. I don’t know where they get that idea from. The chair does not go up a small incline or over a small bump without pitching to one side or the other even to get in and out of the front door. That’s the problem. It has no power. They reemed Medicare. It is not the right chair.
”This chair was provided to you to meet your height and weight measurements and to allow you to get around inside your home”.
But not disability needs and it does not enable me to even get out the front door in case of a fire. They just asoon I burn to death.
They didn’t measure my height and weight either. I couldn’t stand up for height and they didn’t bring a scale for weight. I had three other witnesses see that. So that’s a lie.
“You asked us to narrow the seat (which we didn’t recommend) but you insisted and so when we picked it up for the modifications and noticed that there were different wheels on the chair.”
They did not tell us that they did not recommend narrowing the seat. The seat was way too wide and crashed into the hall walls and doorways. The chair was for a 600+ lb person width wise and was just too wide. This goes back to the better wheelchair and the profit that they wouldn’t make, so I get to suffer. They told us to put bigger tires on it and to modify it for them, which proved to be dangerous going up and down the ramp. The chair almost ended up going over backwards numerous times and had to be physically pushed up the ramp by two men. There is another witness to attest to how dangerous it became.
“You said they were from your old chair and because they were larger it would go outside easier”
The other one kicks this new one’s ass outside. It has no leg lifts though. The leg lifts on the new one are worse than no leg lifts at all.
“It is not recommended that you keep those wheels on the chair, as it has modified the way the chair drives”.
Now the disclaimer, so I won’t sue the pants off of them.
They told us to put them on. Now we’re supposed to take them off? Don’t worry that’s done already because they made this stupid chair totally unsafe anyway. Oh and it is a Pride Quantum Rehab chair—useless to me.
We put those different wheels and tires on it in hopes the chair would work...at all. They didn't solve the problem.
“We have made every accommodation that we are able to do. The chair was custom ordered to your specific needs to enable you to get around inside your home.”
Notice how there is no mention of the leg rests and my complaints about them not being high enough. The chair is unusable to me mainly because of that.
Nice kiss if ending huh.
Sincerely,
Loser President of the Company
who doesn’t give a rats ass about the customer especially a disabled one.
I have complained about everything I mentioned above and more to the supplier. Did they fix it? No. Instead I get this kiss off letter.I would name the company, but I need to brush up on the CA state libel law.
I do hope that others will come forward and group together against this Sacramento, California Medical Supply company. Medicare has informed me that if there are enough complaints against this company then they will indeed pull their Medicare contract. I believe this company has no business being in the medical supply business under Medicare contract. We the disabled cannot sit back and let these companies take advantage of us, Medicare, or the taxpayer. We might be disabled, but we still have a voice and a strong one at that.
I did find another person on the net that has problems with this same company.
This post will be added to when my husband sees it. I’m sure I forgot something.
Wednesday, November 18, 2009
The MS Specifics
Born: Summer, 1973
Female
6'1" and proud of it.
DX with RRMS 2005. Been on a downhill slippery slope ever since.
Married to Hoodyup aka Andrew (God's gift) since summer, '03.
Symptoms and treatments from beginning to now.
Acronyms:
HH = Home Health
LP = Lumbar Puncture
Dr. = Doctor
GP = General Practitioner
neuro = neurologist
eye doc = ophthalmologist
MS = Multiple Sclerosis
2005 Summer
(still driving and working) noticed vision would decrease after standing or walking or being outside where it was warm. Couldn’t drive with this vision. Vision returned to normal if I sat down, cooled off, and relaxed.
Had one really bad bladder infection.
Nose bleeds.
Migraines that took the vision away temporarily.
Went to walk-in clinic for the vision issue.
Was referred to incompetent ophthalmologist.
She slapped glasses on me that didn't help and didn't refer me just sent me on my way.
2005 Fall
Numbness on right thigh. Went to a different walk-in clinic. Dr. ordered a MRI and referred me to neuro.
Noticed I started walking like a drunk person. No, I was sober.
Dr. called me at work to tell me I had inflammation in my brain. That's a fine howdie doo.
Went to neuro and got LP ordered with blood tests. Results where lesions in the spinal cord. Blood came back with decreased white cells.
DXed with MS.
Was severely bowel incontinent and heat intolerant at work
Took 5-month leave from work.
Neuro put me on Copaxone. Results were grapefruit-sized welts.
Quit it after 30 days.
Tried hyperbaric chamber due to quack diagnosis of Lyme--caused vision loss. Quit after 6 times for fear it would cause me to lose my eye site 100%. Tried antibiotics (doxy) and resonant light machine. No results. Found Lyme treatments to be futile and just a waste of time.
Experienced jolting stabbing/electric shocks in my neck for a month or so--2 or 3 times per day.
2005 December
Eye doc (different one than before) refers me to UC neuro-opthalmalagist. He throws me on IV steroids and admitted me into the neuro ward at the hospital because of fear of losing eyesight 100%.
Resident tries to put me on Prozac. Didn't happen.
Had another LP that went bad and had subsequent blood patch. Stupids!
Got another MRI--was their guinea pig because I had great insurance.
After 5 days of that I threatened the incompetent nurses (one last stick--if ya don't get it, I'm outa here-they didn't stick me--couldn't 'cause I had collapsed veins from their abuse) and left with Prednisone and no instructions on WHY to take a tapering off dose. Stupids!
Get this. After all the torture they put me through, the UC charged ME for my medical records. Even after giving them my insurance card when I first showed up there, when all was said and done, they had the balls to bill ME $65,000. I told them to bill the insurance and they did. Even after that they sent me a request for a donation. Unbelievable. I responded back in their prepaid envelope that I should be paid for the unnecessary pain they caused me, they're lucky that I'm not suing them, and that they got plenty of money out of my insurance and I'm not giving them a penny and gave them a generous F&*@ OFF!
Saw neuro when I got home. Symptoms from LP gone bad--sitting in a boat in the middle of the ocean feeling.
Neuro told me to take Avonex. I accused him of getting a kick back from the pharmies. I refused it. Being that I'm sensitive to meds, I didn't feel like going through the flu once a week or getting liver damage when there is only a low chance that it may or may noy help. I for sure would get the negative sige effects. Those outweigh the posibility of a maybe. I believe in quality of life. The Avonex side effects don't sound like a good quality of life to me.
That was the last visit to that neuro. He had no bedside manner, charged me $15 for every little tiny extra thing I needed and was an all-around classic jerk.
I have not been to another neuro since. Teaches at the UC and was there when I was there and knew I was there, but didn't even bother to check on me.
Went into adrenal failure (didn't take the prescribed Prednisone-didn’t know) at my mom's house. She took care of me for 2 weeks. I didn't care if I lived or died at that point.
Cut my hair from waist length to a bob. I always had fabulous, long blond curly hair--one of my better attributes. It became too much to handle and comb.
2006 February
Went to Half Moon Bay for the last time with Andrew. Had a freakin' good time. Was still walking, but couldn't make it to the Mavericks beach. Was the fattest I'd ever been--results of steroids.
Quit my awesome job.
2006 April
Went to Minnesota. I don't know how I made it there and back.
2006 Summer
Fell in the kitchen. ER doc said I pulled the major ligament on the inside of the knee.
2006 October
Bladder incontinence started. Was triggered by yet another bladder infection.
Sprained ankle while water sealing the barn. Was using borrowed electric wheelchair during summer.
Short-term memory started failing.
2007
Did nothing for MS. I lived my life and enjoyed what I could and bitched at Andrew to buy a new house.
Started to notice tinnitus in my left ear. Like 2 specific notes on a keyboard being played over and over.
2008 Spring
bladder infection
bladder incontinence
GP ordered brain MRI. 8 mm lesion found among numerous smaller ones.
Had to beat the GP over the head to do something about the discoloration starting in my feet.
Saw surgeon who ordered doppler test and another test on my feet and legs.
Results were nothing found.
Surgeon prescribed full leg compression hose. They worked for a while and then I stopped wearing after they trapped the blood at my ankles causing more pain.
March 2008
Bought new house. Had the mother of all nose bleeds at real estate office.
Was still walking with walker.
I had to desperately drive a stick shift vehicle to get the money to the bank and transferred on time by the closing date. Adrenalin allowed me to do that.
Cello bows took priority over me, so I had to do it as pissed off as I was.
2008 May
Moved to new house.
Summer 2008
Major head hair loss.
Decrease of walking. Still could use the walker somewhat.
2008 Fall
Thanksgiving dinner and Christmas dinner were both cooked by Andrew.
Parents sign me up for hot therapy baths. I refuse. Dr. Swank's book says doing that could cause irreversible damage in MS patients.
2009 Feb
Tired of the crap. Leg pain gets worse. Saw new GP. Started LDN 3 mg. LDN relieved leg pain. Went from 8 to 1 on pain scale with 0 being absolutely no pain and 10 being unbearable, but only when feet were elevated.
2009 March
Home Health started.
Ophthalmologist certifies me "legally blind". Optic neuritis in both eyes. Pale optic nerves.
2009 April
Beloved aunt passed away of cancer in may '09.
Saw her for the last time at GP's office. GP ordered electric wheelchair.
2009 Summer
Stopped walking altogether. Can't put feet on the floor for more than a minute due to severe pain and purple swollen toes even when taking LDN nightly.
2009 September
Had to cancel blood test and GP appointment due it being too hot (90 degrees at 9 a.m.) and I couldn't get into the car.
GP opened HH again.
Hubby had a break down and saw the local pastor and found thisisms.com.
I started reading and posting on thisisms.com. Good mental therapy for both of us. Where Andrew found out about CCSVI procedure.
Constipation is now common place. I eliminate once every other day if I'm lucky. Recently, I've gone 7 and 10 days without going.
2009 October
Andrew called Stanford
Later we talked to Dr. Dake.
Waiting for return call to go do scans.
2009 November
Medicare is still working on fraud claim I filed against the electric wheelchair supplier. A $19,000 electric wheelchair should get me out of the house and lift my legs to where they are not caused pain. It does not. Supplier sent me a nasty letter with the wrong zip (Stupids!) full of lies. Don't get me started on that subject.
Short-term memory loss so bad that if a thought comes into my head and I don't act on it immediately, it disappears forever.
I got leg braces that pinched my right calf and caused a bruise with a sizable wound.
A shower chair I bought online broke under me and tossed me onto the floor.
Remodel of the bathroom finished. Can't use it. No shower chair.
I'm now completely dependent on a manual wheelchair and am home confined.
I don't know what it is about family going behind my back and signing me up for therapies or procedures in which they think it will help. Apparently they think MS has made me stupid.
Anybody else wanna take a swing at me? I got long arms and big fists and I'll pop ya a good one.
Female
6'1" and proud of it.
DX with RRMS 2005. Been on a downhill slippery slope ever since.
Married to Hoodyup aka Andrew (God's gift) since summer, '03.
Symptoms and treatments from beginning to now.
Acronyms:
HH = Home Health
LP = Lumbar Puncture
Dr. = Doctor
GP = General Practitioner
neuro = neurologist
eye doc = ophthalmologist
MS = Multiple Sclerosis
2005 Summer
(still driving and working) noticed vision would decrease after standing or walking or being outside where it was warm. Couldn’t drive with this vision. Vision returned to normal if I sat down, cooled off, and relaxed.
Had one really bad bladder infection.
Nose bleeds.
Migraines that took the vision away temporarily.
Went to walk-in clinic for the vision issue.
Was referred to incompetent ophthalmologist.
She slapped glasses on me that didn't help and didn't refer me just sent me on my way.
2005 Fall
Numbness on right thigh. Went to a different walk-in clinic. Dr. ordered a MRI and referred me to neuro.
Noticed I started walking like a drunk person. No, I was sober.
Dr. called me at work to tell me I had inflammation in my brain. That's a fine howdie doo.
Went to neuro and got LP ordered with blood tests. Results where lesions in the spinal cord. Blood came back with decreased white cells.
DXed with MS.
Was severely bowel incontinent and heat intolerant at work
Took 5-month leave from work.
Neuro put me on Copaxone. Results were grapefruit-sized welts.
Quit it after 30 days.
Tried hyperbaric chamber due to quack diagnosis of Lyme--caused vision loss. Quit after 6 times for fear it would cause me to lose my eye site 100%. Tried antibiotics (doxy) and resonant light machine. No results. Found Lyme treatments to be futile and just a waste of time.
Experienced jolting stabbing/electric shocks in my neck for a month or so--2 or 3 times per day.
2005 December
Eye doc (different one than before) refers me to UC neuro-opthalmalagist. He throws me on IV steroids and admitted me into the neuro ward at the hospital because of fear of losing eyesight 100%.
Resident tries to put me on Prozac. Didn't happen.
Had another LP that went bad and had subsequent blood patch. Stupids!
Got another MRI--was their guinea pig because I had great insurance.
After 5 days of that I threatened the incompetent nurses (one last stick--if ya don't get it, I'm outa here-they didn't stick me--couldn't 'cause I had collapsed veins from their abuse) and left with Prednisone and no instructions on WHY to take a tapering off dose. Stupids!
Get this. After all the torture they put me through, the UC charged ME for my medical records. Even after giving them my insurance card when I first showed up there, when all was said and done, they had the balls to bill ME $65,000. I told them to bill the insurance and they did. Even after that they sent me a request for a donation. Unbelievable. I responded back in their prepaid envelope that I should be paid for the unnecessary pain they caused me, they're lucky that I'm not suing them, and that they got plenty of money out of my insurance and I'm not giving them a penny and gave them a generous F&*@ OFF!
Saw neuro when I got home. Symptoms from LP gone bad--sitting in a boat in the middle of the ocean feeling.
Neuro told me to take Avonex. I accused him of getting a kick back from the pharmies. I refused it. Being that I'm sensitive to meds, I didn't feel like going through the flu once a week or getting liver damage when there is only a low chance that it may or may noy help. I for sure would get the negative sige effects. Those outweigh the posibility of a maybe. I believe in quality of life. The Avonex side effects don't sound like a good quality of life to me.
That was the last visit to that neuro. He had no bedside manner, charged me $15 for every little tiny extra thing I needed and was an all-around classic jerk.
I have not been to another neuro since. Teaches at the UC and was there when I was there and knew I was there, but didn't even bother to check on me.
Went into adrenal failure (didn't take the prescribed Prednisone-didn’t know) at my mom's house. She took care of me for 2 weeks. I didn't care if I lived or died at that point.
Cut my hair from waist length to a bob. I always had fabulous, long blond curly hair--one of my better attributes. It became too much to handle and comb.
2006 February
Went to Half Moon Bay for the last time with Andrew. Had a freakin' good time. Was still walking, but couldn't make it to the Mavericks beach. Was the fattest I'd ever been--results of steroids.
Quit my awesome job.
2006 April
Went to Minnesota. I don't know how I made it there and back.
2006 Summer
Fell in the kitchen. ER doc said I pulled the major ligament on the inside of the knee.
2006 October
Bladder incontinence started. Was triggered by yet another bladder infection.
Sprained ankle while water sealing the barn. Was using borrowed electric wheelchair during summer.
Short-term memory started failing.
2007
Did nothing for MS. I lived my life and enjoyed what I could and bitched at Andrew to buy a new house.
Started to notice tinnitus in my left ear. Like 2 specific notes on a keyboard being played over and over.
2008 Spring
bladder infection
bladder incontinence
GP ordered brain MRI. 8 mm lesion found among numerous smaller ones.
Had to beat the GP over the head to do something about the discoloration starting in my feet.
Saw surgeon who ordered doppler test and another test on my feet and legs.
Results were nothing found.
Surgeon prescribed full leg compression hose. They worked for a while and then I stopped wearing after they trapped the blood at my ankles causing more pain.
March 2008
Bought new house. Had the mother of all nose bleeds at real estate office.
Was still walking with walker.
I had to desperately drive a stick shift vehicle to get the money to the bank and transferred on time by the closing date. Adrenalin allowed me to do that.
Cello bows took priority over me, so I had to do it as pissed off as I was.
2008 May
Moved to new house.
Summer 2008
Major head hair loss.
Decrease of walking. Still could use the walker somewhat.
2008 Fall
Thanksgiving dinner and Christmas dinner were both cooked by Andrew.
Parents sign me up for hot therapy baths. I refuse. Dr. Swank's book says doing that could cause irreversible damage in MS patients.
2009 Feb
Tired of the crap. Leg pain gets worse. Saw new GP. Started LDN 3 mg. LDN relieved leg pain. Went from 8 to 1 on pain scale with 0 being absolutely no pain and 10 being unbearable, but only when feet were elevated.
2009 March
Home Health started.
Ophthalmologist certifies me "legally blind". Optic neuritis in both eyes. Pale optic nerves.
2009 April
Beloved aunt passed away of cancer in may '09.
Saw her for the last time at GP's office. GP ordered electric wheelchair.
2009 Summer
Stopped walking altogether. Can't put feet on the floor for more than a minute due to severe pain and purple swollen toes even when taking LDN nightly.
2009 September
Had to cancel blood test and GP appointment due it being too hot (90 degrees at 9 a.m.) and I couldn't get into the car.
GP opened HH again.
Hubby had a break down and saw the local pastor and found thisisms.com.
I started reading and posting on thisisms.com. Good mental therapy for both of us. Where Andrew found out about CCSVI procedure.
Constipation is now common place. I eliminate once every other day if I'm lucky. Recently, I've gone 7 and 10 days without going.
2009 October
Andrew called Stanford
Later we talked to Dr. Dake.
Waiting for return call to go do scans.
2009 November
Medicare is still working on fraud claim I filed against the electric wheelchair supplier. A $19,000 electric wheelchair should get me out of the house and lift my legs to where they are not caused pain. It does not. Supplier sent me a nasty letter with the wrong zip (Stupids!) full of lies. Don't get me started on that subject.
Short-term memory loss so bad that if a thought comes into my head and I don't act on it immediately, it disappears forever.
I got leg braces that pinched my right calf and caused a bruise with a sizable wound.
A shower chair I bought online broke under me and tossed me onto the floor.
Remodel of the bathroom finished. Can't use it. No shower chair.
I'm now completely dependent on a manual wheelchair and am home confined.
I don't know what it is about family going behind my back and signing me up for therapies or procedures in which they think it will help. Apparently they think MS has made me stupid.
Anybody else wanna take a swing at me? I got long arms and big fists and I'll pop ya a good one.
Before MS
This is my life before MS.
Born.
Grew up in a semi-rural area in northern California.
Started riding horses at 10 years old.
I lost half of my vision periodically at age 14.
Stopped playing basketball at 18. Ankles were too damaged from injuries.
2001 Gallbladder removal
Summer, 2002. lost balance due to disorientation on front steps of house. Fell and sprained ankle severely.
Went with Andrew on the road/engagement trip of a lifetime from Crescent City to San Diego, California.
Summer 2003. Got married at age 29.
Got dream job at age 30.
Diagnosed with MS at age 31 1/2.
I don't wanna tell my whole life story. It's private.
Born.
Grew up in a semi-rural area in northern California.
Started riding horses at 10 years old.
I lost half of my vision periodically at age 14.
Stopped playing basketball at 18. Ankles were too damaged from injuries.
2001 Gallbladder removal
Summer, 2002. lost balance due to disorientation on front steps of house. Fell and sprained ankle severely.
Went with Andrew on the road/engagement trip of a lifetime from Crescent City to San Diego, California.
Summer 2003. Got married at age 29.
Got dream job at age 30.
Diagnosed with MS at age 31 1/2.
I don't wanna tell my whole life story. It's private.
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